Canberra Region Kidney Support Group Inc

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The Canberra Region Kidney Support Group Inc (CRKSG) is an incorporated association within the laws of the Australian Capital Territory. It is an income-tax exempt charitable institution, as a patient self-help group, providing support among persons with or affected by renal conditions.

The CRKSG began in 1993 in response to the needs of Renal Patients and their Families. The objectives of the Group are:

• Provide support to the renal patients and their families and friends.

• Generate community discussion and understanding of the issues related to organ donation and transplantation.

• Be actively involved in education about renal disease and renal failure within the wider Canberra Community.

• Raise funds to assist disadvantaged patients in need of medical equipment, to purchase and acquire equipment to enhance the quality of life for dialysis patients.

Membership is open to:

• Patients (haemodialysis, peritoneal and transplant), their families and friends,

• Health professionals, and

• Health related support agencies or organisations.

Funds:

Our Association is a registered charity and has no paid staff. We are therefore reliant on volunteers, donations and fund raising to continue our services. All donations $2.00 and over are tax deductible.

Activities

The activities of the CRKSG include:

• Newsletter

  To keep members informed about renal issues of interest and to give you an open line for comment. Just go to the Newsletters link to view newsletters commencing with the Autumn 2004 edition.

• Fund Raising

  For quite some time fund raising was a bit of a problem for the Group, mainly because of insurance costs. During the past year/18 months we were able to resolve this and we ran a couple of quite profitable Bunnings Sausage Sizzles.

• Requests for Assistance

  Raising funds enables us to provide assistance to those with difficulties in meeting costs resulting from their treatment. Requests for assisstance will normally be arranged in conjunction with the Renal Unit Social Worker but may also be arranged through the head nurses of the dialysis units.

• Patient Information

  Various resources, including holiday dialysis facilities, and access to a variety of booklets and information.

• Advocacy

  CRKSG has advised the ACT Health Council and is affiliated with the Health Care Consumers Association of the ACT (HCCA) and Self Help Organisations United Together (SHOUT) ACT.

Access to Community Programs

Members have access to ACT Community programs such as:

• Living a Healthy Life with Chronic Conditions, and

• Consumer Representative training.